Memorial Day
It's a day with "memory" built into the name, but I spent it at the place of forgetting. David, Laurie, and I gathered with Mother at The Birches for lunch. They are very good at recognizing holidays and occasions and many residents were gathered around the outdoor grills for the salads and burgers and hot dogs so common on the holiday.
David had reserved the private dining room for us, so we were away from the crowds. Mother has deteriorated quite a bit in her ability to move around. I think I already mentioned that she has gained a good bit of weight...probably at least in part because of her decreased ability to move. She doesn't seem able now to get out of a chair unassisted, so once she is seated, she stays put until someone gets her up. Perhaps we'll need to consider a wheelchair.
While I noted not too long ago that Mother was engaging more in "conversation," that was not the case on Monday. She spoke two words during the entire time. She did eat, but was unresponsive to questions.
A few days earlier I was writing a new-found cousin, who I had discovered in some of my geneological pursuits. As we were exchanging information, I caught myself writing about Mother in the past tense. That's really what a visit with someone with Alzheimer's is like. You visit a memory of the past. Others went to cemeteries on Memorial Day and reached back for memories of loved ones while looking at a granite stone. We went to a sort of living tomb...lovely, kind, bedecked with flowers, but still we were looking at one thing and trying to remember something different...something alive...memories of what once was and now fades into history.
Several of you readers have written to me and told me stories of your mothers...the amazing accomplishments and vibrancy of lives that have been stolen by the disease. I think it's important to keep telling those stories...to keep remembering that what we see when we visit a loved one with Alzheimer's is the tomb of memory. The tomb is real, but so is the memory. We gather there and remember that they are not the granite slab, they are not the body shell, they are in spirit still what they have always been. That reality is simply fading from our view...like trying to hang onto a cell phone signal while entering a remote wilderness.
The person who is my mother exists still, but in a different dimension or form. More and more I can only reach out and touch the stone.
David had reserved the private dining room for us, so we were away from the crowds. Mother has deteriorated quite a bit in her ability to move around. I think I already mentioned that she has gained a good bit of weight...probably at least in part because of her decreased ability to move. She doesn't seem able now to get out of a chair unassisted, so once she is seated, she stays put until someone gets her up. Perhaps we'll need to consider a wheelchair.
While I noted not too long ago that Mother was engaging more in "conversation," that was not the case on Monday. She spoke two words during the entire time. She did eat, but was unresponsive to questions.
A few days earlier I was writing a new-found cousin, who I had discovered in some of my geneological pursuits. As we were exchanging information, I caught myself writing about Mother in the past tense. That's really what a visit with someone with Alzheimer's is like. You visit a memory of the past. Others went to cemeteries on Memorial Day and reached back for memories of loved ones while looking at a granite stone. We went to a sort of living tomb...lovely, kind, bedecked with flowers, but still we were looking at one thing and trying to remember something different...something alive...memories of what once was and now fades into history.
Several of you readers have written to me and told me stories of your mothers...the amazing accomplishments and vibrancy of lives that have been stolen by the disease. I think it's important to keep telling those stories...to keep remembering that what we see when we visit a loved one with Alzheimer's is the tomb of memory. The tomb is real, but so is the memory. We gather there and remember that they are not the granite slab, they are not the body shell, they are in spirit still what they have always been. That reality is simply fading from our view...like trying to hang onto a cell phone signal while entering a remote wilderness.
The person who is my mother exists still, but in a different dimension or form. More and more I can only reach out and touch the stone.
posted by Anne Robertson | 12:32 PM
5 Comments:
Anne--I like this: "the tomb of memory." My mother, like yours, is slowly disappearing into Alzheimer's and your advice to write it all down, maintain the memories, is right on. I've been enjoying reading your blog and your ability to convey the spiritual dimension of this difficult time--for both sufferer and caregiver--is very comforting to me. Thank you!
Dear Anne,
I came across your website this evening and was captivated by your journal of visits with your mother. My father just died in January 2006, having endured Alzheimer's for the past eleven years.
We cared for him at home, and while it was a harrowing, crushing experience, I remember thinking how much harder it would have been for me if my mother hadn't been there.
For you to be losing your mother must be truly a most challenging experience. Alzheimer's calls for great courage from caregivers. And after eleven years, I can recognize the sound of a courageous voice in so many ways.
Eleven years flipped a switch in me. I have become an rabid advocate for Alzheimer's research, believing the only way to fight this disease is to beat it in the lab.
My hope is that people like you, with the courage and grace to communicate the true story of this experience, will continue to write, to document, to advocate and to stand beside their loved one.
I look forward to reading your future posts.
With warmest regards,
Patty McNally Doherty
Dear Anne,
I came across your website this evening and was captivated by your journal of visits with your mother. My father just died in January 2006, having endured Alzheimer's for the past eleven years.
We cared for him at home, and while it was a harrowing, crushing experience, I remember thinking how much harder it would have been for me if my mother hadn't been there.
For you to be losing your mother must be truly a most challenging experience. Alzheimer's calls for great courage from caregivers. And after eleven years, I can recognize the sound of a courageous voice in so many ways.
Eleven years flipped a switch in me. I have become an rabid advocate for Alzheimer's research, believing the only way to fight this disease is to beat it in the lab.
My hope is that people like you, with the courage and grace to communicate the true story of this experience, will continue to write, to document, to advocate and to stand beside their loved one.
I look forward to reading your future posts.
With warmest regards,
Patty McNally Doherty
Dear Anne,
Thank you for sharing. Your last entry was May 31. Will you be adding more?
Yes, life has just been crazy. I was just up there for July 4, but haven't posted that visit yet. Thanks for your interest and support!
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